Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Terminally ill man warned others not to make the same mistake he had made
Liam had bravely shared his story to warn others not to make the same mistake that he did. Check in comments.
There are times when despite feeling unwell, we refuse to visit a doctor hoping that the pain would eventually go away on its own. The sad reality is that if we don’t seek medical help when we first feel the symptoms of an illness, it may be too late when we do it.
A 31-year-old man from Middlesborough, UK, who was battling terminal cancer advocated about the importance of regular check-ups and visiting a doctor on time.
Liam Griffiths believed that he could have been able to beat the cancer had he turned to a medical professional sooner.
Despite his efforts to beat the illness, Liam was delivered the devastating news it was fatal.
Namely, he was suffering from peritoneal cancer, a form of cancer that affects the lining of the abdomen.
In an interview, Liam revealed that he started experiencing stomach swelling, chronic constipation, cramps and vomiting in March of 2023. Although his symptoms seemed to be severe, he didn’t visit a doctor because he was self-employed and didn’t want to lose out on wages.
He hoped the symptoms would go away, but they only worsened and became even more severe which forced him to seek medical help. Once at the hospital, he was diagnosed with Crohn’s Disease, but a month later he got a call from the doctor and was informed that he was in fact misdiagnosed and that he had cancer.
He started treatments right away, but sadly, his cancer was resistant to the chemotherapy.
Despite the gravity of his situation, this young man found the time and strength to send a message to every person out there, and that message is not to delay the doctor’s visit in case you feel something’s wrong with your body.
“I want to push this message because if just one or two people go to the hospital and get checked because of my mistake and my story, that would be amazing,” he said. “They found my cancer at stage three advanced – but if I had just gone to see the doctors earlier, maybe they could have caught it. I was self-employed, and I needed the money, so I just kept powering through. I did what I thought a man needed to do – I was manning up.”
Not losing hope despite the dull prognosis, Liam’s friend, Eve Bannatyne, started a fundraiser which helped raise over £18,000 in donations for Liam’s private treatment because his chemotherapy on the NHS no longer worked.
“I remember I asked what my life span would look like and my doctor said he doesn’t want to give me a timeframe of when my life could end, because he doesn’t want me to focus my whole life around it,” Liam told Metro.
“I agreed and just decided I wanted to get home, fulfil some wishes and just live my life while I can.”
Sadly, Liam passed away on February 1, 2024.
The memorial service for him was led by Rev John Hearn. Liam’s dad spoke of his son and said, “Liam was a beautiful, funny, caring, big softie. As a kid he was very loving towards his mam and dad. There was always a cuddle. He also had his cheeky side.”
Liam’s life story serves as a reminder that we should always prioritize our health, even if that means losing out on wages or rescheduling certain commitments and duties.
We are so very sorry for this brave man’s passing. May he rest in peace.
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