Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Maid’s Unexpected Find in Boss’s Bedroom Raises Eyebrows – Is This More Than a Coincidence
Caroline got a job as a cleaning lady in New York and went to her first assignment. It was a beautiful house in Manhattan, but she was shocked to find a picture of her mother in the office. Then, a man walked in.
Caroline had recently moved to New York with her friend, Melissa, to chase their Broadway dreams. Before they could find an apartment, they needed jobs. Melissa got a position at a clothing store, and Caroline was hired by a domestic cleaning agency.
The job was perfect for her. It wasn’t too demanding, and she enjoyed cleaning because it helped her relax. Plus, if no one was home, she could practice her singing.
Caroline couldn’t stop thinking about her mother before starting her first job. Her mother, Helen, had never wanted Caroline to follow her dreams or live in New York.
Caroline grew up in Philadelphia and didn’t have a father, as Helen never talked about him. Helen also had a strong dislike for New York and had always been overprotective of Caroline, which made her feel trapped.
When Caroline and Melissa planned their move, Caroline knew her mother would not approve. She worried Helen might even fake being sick to make her stay. But Caroline was determined to pursue her dreams, so she left a short note on her mother’s dresser while Helen was asleep and left.
It had been a few days, and Helen hadn’t called, which felt strange, but Caroline thought her mother was probably just angry. She hoped Helen would come around once she made it on Broadway. For now, Caroline focused on her cleaning job.
The agency director had told her that an older man lived in the house alone, so it wasn’t very messy. Following the instructions, Caroline used the key under the mat to enter the house and started cleaning right away, beginning with the kitchen, then the living room, and finally moving to the bedroom.
Caroline was nearly finished with her cleaning when she noticed a photo of her mother on the office mantelpiece. She hesitated before asking, “I’m almost done, sir. But may I ask a question? Who is this woman?”
She was standing at the entrance of the serious-looking office. There were no instructions against entering, so she carefully continued her work, avoiding the desk area.
The office was impressive, with a beautiful fireplace, a mantelpiece, and large bookshelves lining one wall. It looked like something from a movie.
Caroline quickly and thoroughly cleaned the office but stopped when she saw the photo on the mantelpiece. The woman in the picture looked like her mother, but much younger. She wondered aloud, “Why is my mother in this man’s pictures?”
Just then, she heard footsteps, and an older man entered the room. “Oh, hello there! You must be the new cleaning lady. I’m Richard Smith. I own this house,” he said with a friendly smile. “Are you finished in here?”
Caroline replied, “I’m almost done, sir. But may I ask a question?” She hesitated, hoping he wouldn’t mind her asking about the photo. “Who is this woman?”
Richard put on his glasses and looked at the photo. “Ah yes. That’s Helen. She was the love of my life,” he said.
Caroline’s curiosity was piqued. “What happened to her?” she asked.
Richard sighed, “She died in a bus crash. She was pregnant at the time. I couldn’t even go to her funeral because her mother hated me. It was a tough time. I tried to move on, but I never really did. I still love and miss her.”
Caroline felt a chill. “Sir, I’m sorry to intrude, and thank you for sharing that. But this woman… she looks so much like my mother. It’s incredible.”
Richard looked confused. “What do you mean?”
Caroline explained, “Well, my mother, also named Helen, looks just like this woman. Of course, she’s older now, but the resemblance is striking. I’m almost sure this is her,” she said, pointing to the photograph.
Richard asked Caroline, “Helen? Your mother’s name is Helen? Where did you grow up?”
“Philadelphia,” Caroline replied, shrugging. She suddenly realized that if the woman in the photo was her mother, this man might be her father.
Richard put his hands over his mouth in shock. “This can’t be possible…” he whispered. “Can I have your mother’s phone number?”
“Sure,” Caroline said and gave it to him.
“Can you stay here while I call her?” Richard asked. Caroline agreed.
Richard made the call from his office phone. After a few rings, her mother’s voice came on the line. “Hello? Is it you, Caroline?”
Richard glanced at Caroline but spoke first. “Is this Helen Geller?”
“Yes. Who am I speaking to?” Helen responded from the other end.
Richard’s voice wavered with emotion as he said, “Helen, it’s Richard.”
“Helen, who? Wait a minute. Richard Morris? What do you want after all these years?” Helen’s voice became cold.
Caroline and Richard looked at each other, puzzled. Richard pressed on, “What do you mean after all these years? I thought you were dead!”
“What?” Helen replied, confused.
Richard explained that he had lost Helen and their unborn baby in an accident. He told her how her mother had kept him away from the funeral and didn’t tell him anything afterward. But Helen was baffled and told him her side of the story.
“My mother said you called and decided you wanted nothing to do with me. So I raised my daughter on my own,” Helen explained. Caroline was stunned by this unexpected twist.
Richard continued, “Helen, I would never have left you. I never moved on. I’ve thought about you and our baby every day. I’ve been in pain for almost twenty years.”
Helen was silent. Then she said, “I can’t believe Mom would do this. But that was her way. I don’t know what to do now. Wait. How did you find out I’m still alive?”
Caroline spoke up, “Mom, I’m here.” She quickly explained what had happened and assured her mother that she was okay in New York.
Helen was in disbelief. “I can’t even ask my mother why she did something so cruel. She passed away years ago. But anyway, when are you coming back home, Caroline?”
Caroline replied, “I’m not coming back until I make it on Broadway. And now, I have another reason to stay here.” She glanced at Richard with a small smile.
Helen said, “Fine, but I’m coming to New York soon,” and then hung up. Richard and Caroline stared at each other in silence for a moment before speaking.
“So, I guess you’re my dad,” Caroline said with a smile. Richard laughed, and that helped them start to connect.
What can we learn from this story?
1. Let your children follow their dreams. Caroline left because her mother was too protective. It’s important to guide your children but let them make their own choices.
2. Sometimes, parents don’t always have your best interests at heart. Helen’s mother did something awful to both Helen and Richard, and they might never know why.
3. Share this story with your friends. It might brighten their day and inspire them.
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